| Revista INFAD 2012 |
ISSN EDICIÓN EN PAPEL: 0214-9877 |
| Nº1, Vol. 3, pp. 39-47 | doi: en trámite |
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Atención temprana e intervención familiar
Ruiz-Fernández, I. / Fajardo, I. / Bermejo, L. / Calzado,Z
/ Pérez-Ruiz, M. / García, V. / Gordillo,M . pp. 39-47
Abstract
The family is the first environment where we develop and evolve on the physical, educational, social and emotional development. The early childhood experiences and attachment relation establishing will be determined by the family. This should provide sufficient opportunities to develop those skills and personal and social skills that allow its members to grow with confidence and autonomy, being able to relate and act successfully in the social sphere.
When a child is born with disabilities is a shock to the family system. The fact is perceived as something unexpected and strange changing expectations about the desired child. The loss of these expectations and the disenchantment with the evidence of disability (or possibility), at first going to be devastating, it’s as if the future of the family had stopped at a threat. With this research we plan to determine the degree of information that families of children with achondroplasia have at the time of the birth of their child and how access to it, and to evaluate the difficulty of entry to the Early Intervention Services and their involvement in them. Finally, assess the need to create or not a guide to help them in this process. The hypothesis that we set is that most families have a child with achondroplasia have a lack of knowledge about this disability and its treatment.
That the information provided to them at the time of birth, is insufficient and reassuring. That access to early childhood intervention is difficult and hard on acceptance. Finally, we considered the need for a guide to early childhood intervention in achondroplasia, to assist in this process. The methodology is based on an analysis by Likert questionnaires type that were sent through e-mail to 17 families of children with achondroplasia who were between 0 and 6 years. The findings, based on the results of questionnaires are that the degree of parental knowledge about disability, at the time of birth is very low, that the information found is mostly medical, medical professionals not provide sufficient information to families, access to early childhood intervention is difficult and mainly mothers engage in an active way in the intervention, although there is good acceptance of achondroplasia in these early years and they believe necessary the creation of an Early Warning guide.
Keywords: Early intervention, Families, Early Childhood, Achondroplasia.
