|Revista INFAD 2012||
ISSN EDICIÓN EN PAPEL: 0214-9877
|Nº1, Vol. 1, pp. 225-234||doi: en trámite|
Percursos inclusivos familiares e pré-escolares de crianças com síndrome do x frágil – estudo exploratório no contexto português.
Liliana Morais / Vítor Franco. pp. 225
The Fragile X Syndrome is a disease with genetic etiology that affects about 1 in every 4,000 male live births and 1 in 8000 females. Has associated changes in morphology, cognitive skills and behavioral
problems, being very common disorders of the autism spectrum. The presence of these syndromic features challenges the inclusive process of these children and their families and is related to a variety of pathways. In this qualitative study, made with interviews with six mothers, are identified the key moments, problems and challenges facing the family inclusion and pre-school inclusion.
Keywords: Fragile X Syndrome, intellectual disability, family inclusion, pré-school inclusion